Chronic Illness
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Eco-Friendly Health & Beauty Swaps with a Disability
*AD | This post contains affiliate links. If you purchase an item using one of these affiliate links I receive a small commission at no extra cost to you.* It’s 2021 we should all be doing our bit to make eco-friendly swaps by now. One person’s actions will not save the planet but the over 7 Billion people in this world can. Which is why it’s important we are all making eco friendly swaps. Sustainability When You have a Disability The disabled community has been targeted a lot over the last 2-3 years. Yes, save the planet. Yes, Save the turtles. Do not blame or take away resources that disabled…
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2 Years with the Alber E-Fix Wheelchair Power Add On
March 2020 marked 2 years since I got my Alber E-Fix Power Add On. I worked really hard on putting this blog post together whilst also relaunching this site. However, as Covid-19 hit the UK in March and we were all under lockdown it didn’t feel appropriate to post this blog. We aren’t any better off than we were in March if anything we’re in a worse position. However, I still wanted to share the last 2 years with my E-Fix with you and along with some overwhelming support over on my Instagram I decided it was time to post. So without further ado… 2 Years with the Alber E-Fix…
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Can CBD Oil Help My Chronic Illnesses
AD| Gifted – I was gifted this product by Dragonfly CBD for my honest thoughts and opinions. This post will also include affiliate links. This means if you purchase something from Dragonfly CBD through my link I earn a small commission however, you do not have to use my affiliate link. DragonFly CBD Dragonfly CBD recently sent James and I their 1000mg 30ml bottle of CBD Oil. James and I wanted to trial CBD for 30 days to give you all our honest thoughts. There are many claims online for what CBD Oil can help with but I personally believe you don’t know until you try and every body is…
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Disabled Owned Small Business Christmas Gift Guide
Welcome to The World in My Words Disabled Owned Small Business Gift Guide! I am excited to share these nine small businesses with you all. Shopping local and with small businesses is something that has been encouraged a lot more over the last few years and this year in particular. There are many small businesses created by chronically ill/disabled people, whether they’ve chosen to start a small business or needed to due to limited employment options. I love to support small businesses for a multitude of reasons including ethical and environmental but being able to support the Disabled Community is very important to me. Many of these small business owners…
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5 Tips for Living with PoTS
AD| Affiliate Link *Disclaimer: I am not a medical professional and I am sharing my own personal experiences.* 1. If you can do it laying down, do it laying down! Sitting upright can be challenging when living with PoTS. So use your upright time wisely by doing everything you can laying down. Split your upright time between things you have to do like chores and things you want to do like hobbies, dinner with family. Whatever you do try to find some balance. 2. STAY. HYDRATED. And use Electrolytes. Tips on staying hydrated are probably better coming from someone who doesn’t spend most of her time dehydrated but it’s a…
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They Told Me I had a (benign) Brain Tumour
*CW: Brief mention of missed periods. Disclaimer: I am not a medical professional. I am discussing my own experience.* Here is the story of when a Doctor told me I had a benign Brain Tumour. Spoiler, I (probably) don’t actually have a brain tumour. What is a benign brain tumour A benign brain tumour is a growth on the brain. The definition of a benign tumour is not malignant i.e. not cancerous. A benign tumour can often be left as it is with the occasional check ups but in some cases depending on where it is and if it’s causing symptoms treatment or removal may be suggested by a Doctor.…
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What is EDS/HSD?
May is EDS/HSD Awareness Month. Thank you if you are reading this, I hugely appreciate your support in raising awareness for these conditions, please help us by sharing this post on your social media platforms. *Disclaimer, I am not a medical professional. I also speak primarily about hEDS/HSD as I have a diagnosis of Hypermobility Syndrome and have more experience discussing this* What is EDS/HSD? The Ehlers-Danlos Syndromes (EDS) are a group of genetic conditions which affect the body’s connective tissue. Connective tissue is like the glue that holds our bodies together, similar to the mortar between bricks. There are 13 different types of EDS including Hypermobile-EDS (hEDS), Vascular-EDS (vEDS) Classical-EDS (cEDS)…
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I Tried Pilates & It Didn't Cure Me
*Disclaimer* I am not a health care professional or fitness instructor. This post discusses my experiences and how I personally feel. This should not be used as treatment or health advice. First up let me just say I am not naïve enough to genuinely think Pilates would cure me. I didn’t start Pilates to be cured or as an experiment however, during the time I was doing Pilates it got me thinking and I thought this may make a useful blog post. Have You Tried? If Chronically Ill, you to have probably heard the sentence “have you tried…” something we are all sick of hearing! It’s often followed by various…
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PoTS Awareness Day 2019 – What is PoTS?
Yesterday, 25th October 2019 was the first annual #PotsAwarenessDay! PoTS, Postural Orthostatic Tachycardia Syndrome also comes under the term Dysautonomia. PoTS is an abnormality of the functioning of the autonomic (involuntary) nervous system. The autonomic nervous system is in charge of all our bodily functions that we don’t have to think about including: heart rate regulation, blood pressure regulation, digestion, bladder control, sweating and stress response. A part of the autonomic nervous system is the sympathetic nervous system. This produces the ‘fight or flight’ response. When this occurs the chemical called norepinephrine is released. It can cause many symptoms including an increase in heart rate and blood pressure. When someone…
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Disabled isn't a Dirty Word
As a society we use our words and twist them to be something they're not. We recreate the definition of a word to spite each other.
